They explained to me that every time she had an "episode" we needed to hit a button to mark it. Unfortunately a resident came in before they could tell me where the button was. He started talking to me and the EEG tech left the room. I asked him where the button was so he showed me (I thought it seemed like an awfully odd "button" but he's the doctor, right?) and he left. Shortly after that I saw her zone out so I ran to do what he said and it wouldn't work! I ran out to get the nurse only to learn that he had told me wrong! The EEG tech was not too thrilled when she came back and learned what he had told me. After that we just sat around doing nothing! Exciting, huh?! I figured for sure they would have at least a game or a couple of toys in the room. Nope. Luckily I brought a couple of books, some school work, and she is very well entertained by plastic gloves! Around 4 or so someone finally came by and asked if we'd like a game or something. After a couple of very long rounds of Candy Land (with a child who doesn't understand the concept of moving the pieces forward on the path), Larry and the boys came to visit. Later my mother in law walked in the room. Oksana had no idea she was coming. When she saw her she completely zoned out. Larry called her name and she didn't respond. He did it again and she "snapped out of it" and then looked at my mother in law confused and asked who she was. We felt confident that if they did not see seizure activity with that one we were free and clear.
Last night she had a very hard time falling asleep so I finally went to bed too so that she wouldn't be distracted. We were woken up when we learned that our room is right below the helipad! After that she was up so I just went to her and told her that it was still the middle of the night and she needed to go back to sleep. She fell back asleep fairly easily. I was woken up again a few times because the nurse sticks her head in every couple of hours just to make sure everything is OK. At 6:30 there was a knock at the door. I got up and a nurse came in letting us know she was doing a finger prick to get blood. In a very surprised voice, I said "Really?!" No one had mentioned a need for blood and I could not imagine why they would need it. She then said "What is her name?" I told her, she stepped out into the light of the hall to check her notes and then said "Oops, sorry." Grrrr.... I laid there for a little longer to see if Oksana would get back to sleep but no luck. So much for sleeping in!
She seemed to also have her "episodes" when a new nurse would come in. We would usually just say her name or tap her on the leg and she would snap out of it. This morning the nurse saw it and felt it was significant enough to hit the button to mark a seizure. So finally at about 10:30am, after about 24 hours on an EEG and 3 marks of a seizure, the doctors came in to discuss the results with me. They had reviewed the EEG and she is NOT having seizures. As you can imagine, we are thrilled. I asked for their theory on why she was doing this and their theory was exactly the same as mine. She uses this as a way to "shut down" or "take a break" mentally. This explains why we see more of them when she is stressed.
After that we still had to wait forever for someone to come in and take everything off of her head. I was getting very annoyed after noon came and went. Finally they came in an gave her some beautiful post EEG hair!
We were both starving and exhausted when we got home. I managed a nap but she didn't so guess who is going to bed at 7 tonight?! We are very glad to have that behind us and to be able to move forward confident that she is not having seizures!
2 comments:
YAY!!! So happy to know that she is not having seizures!! I have a daughter with a seizure disorder and I know it's not a fun thing. I hope things will settle down for Oksanna and she won't need to "shut down" as often. :( Praying for you all!!
What a relief that there are no seizures! Praise God! :)
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