I am not the person to invite to dinner right now because if you sit down
and ask me what I've been up to you might get an answer that will make you lose
your appetite! I've had quite a few people curious to know if Oksana has indeed
continued to do well on the potty so I thought it was time for an update.
The first week Oksana did amazing....really amazing. I can not begin to tell you how proud we were of her! There was one small
problem though. She was going CONSTANTLY. Sometimes every 15 minutes. I called
the doctor and told her that at this point when school started back up she
wouldn't even be able to get an education because she'd be in the bathroom all
day. She was also leaking quite a bit so we were going through underwear like
crazy. They reduced her meds to see if that helped.
Somewhere around that time I noticed that she was not going much at all and
yet she was still leaking. We went from multiple times a day to once in 3 days.
Even with the reduction in meds she was still on a hefty amount of medication
so this was very unusual, but I chalked it up to her body adjusting. Then
Sunday morning came. I won't give you any details here. I'll just say that I
learned then that she had been holding it for 3 days, we got all of it on
Sunday morning, and not on the toilet. I've literally never seen anything like
it and I've seen a lot. She learned that day that when you are on this
medication, holding it ends in disaster. To say I was frustrated is a huge
understatement. She missed church because of the time the clean up took and she
was NOT happy. I hoped she had learned her lesson and we would be ready to move
on and start over again.
Today is Wednesday. She has gone once since Sunday and it wasn't much at
all. Granted she got good and cleaned out on Sunday, it appears she didn't
learn her lesson and is back to her old tricks again.
Honestly, had she never gone on the potty at all it almost would have been
easier to deal with because at least then I wouldn't be positive that she was
more than capable of it. Now that I know she is making a choice to do this I
can not begin to tell you the struggle I am having with that. We head back to
GI at the end of the month for a 1 month follow up. This GI has a child with
autism so she truly understands what we are going through. At our last visit I
told her that we deal with a lot with Oksana, more than I've ever shared on
this blog and more than most people would be willing to put up with. I told her
that 95% of the time we handle her issues with love and grace but this whole
poop issue falls into the other 5%. I'm done with this. She was so extremely
empathetic. She said she had never seen a case of psych related poop issues
this bad and I know she will do whatever she can to help us so I'm anxious to
get back there and tell her what had transpired over the last month.
In the meantime I'm waiting for the fall out of the last 3 days and I just
pray that when it comes it is in the toilet this time. Please God.....
4 comments:
Erin,
Keep your chin up! Josh has the same issues, though I am convinced it isn't because he wants to hold it in, but because he can't control and/or feel what is going on! We go five days, and then it hits the fan. We have tried diet, training, training, and training, to no avail. Since he has a lot of the same issues as Oksana, I understand what you are saying - and what you aren't!
An extra prayer for you for God's strength!
Pat
i am so sorry!! been there!!!!
maybe you have enough.... or maybe you want to know that others have been there... but I kept the poop chronicles from March 2010 until about June or July.... IT was incredible. It was definitely a thing of the will, though they had me wondering sometimes.
Well I definitely fall in the "want to know that others have been there camp" so I immediately went to your blog and I've already made it through March-May. I'm just about to start June. Wow, it's like reading a novel and some of it I could relate to so incredibly well. We have tried to potty train Oksana before and I had to laugh at a post where your daughter said that she was going to do it tomorrow but you guessed she would say the same thing tomorrow. Boy have I heard that one a time or two! What really struck me in the midst of all the poop talk was your post on May 10th. You said "I admit I don't always handle it right. In fact this is the greater source of my discouragement than all the shenanigans those two can can come up with. When I begin to think I cannot do this it's because I have failed again and I am shocked and disgusted at my own character and heart." Oh my goodness. I had to stop and read that 3 times and then read it to my husband. I could have written it. I so get that feeling.
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