Sunday, May 25, 2014

Catching up

Our family is probably in the best place we've been in a year.  We are all working hard on healing from the emotional and physical strain that Oksana's illness put on us.  She is continuing to have a wonderful time of emotional stability.  She rarely has bad days any more, but does still have bad moments.  Summer is coming.  If I said I wasn't nervous I'd be lying, but we know so much more now than we did a year ago.  I've learned that education is key when it comes to mental illness.  The more you know the more equipped you are to respond and help in the best way possible. 

I don't think I have confirmed this yet on my blog.  It took me a long time and a lot of digging to really believe it myself.  Oksana is definitely experiencing auditory and visual hallucinations.  Her therapist is fantastic.  At this time her hallucinations are not violent, she is still present in our reality, and they aren't interfering with her life to the point that she can't do anything without them.  Our therapist and our psychiatrist are going to talk, but we are kind of feeling like because of  those things we do not want to add more medication.  We are hoping to take the approach of helping her to live with them.  If we can keep boundaries around them and she can ignore them when needed and still interact with them when it is appropriate then we would love to avoid another medication.  She is already on some heavy duty stuff to keep her mood stable.  She goes back to her psychiatrist on June 3 so I am anxious to see what she says and if she changes Oksana's diagnosis to schizoaffective disorder.  If you aren't familiar with that it is a blend of bipolar and schizophrenia.  I have no idea if her diagnosis will change now, but I suspect that someday it will.

We had IEP meetings for both girls and they were fantastic.  Both of them are really in their sweet spot at school.  They are growing and thriving so we aren't changing anything.  Of course some goals were adjusted to account for growth over the year, but overall we are all just loving where they are.  Such a change from just a few months ago when we were touring schools because we thought Oksana would not be able to stay in her school.  It felt very good walking out of those meetings with a great plan for next year.

The boys have finished their school year which marks the end of my 10th year of homeschooling.  The homeschool program my boys are in now has been an incredible asset to their education.  They have grown immensely this year and they have really enjoyed what this program has offered.  It looks like we will stay with it until they graduate.  Next year they will be in 10th and 7th grade.  Crazy!

Anya had her 7th birthday at the beginning of the month!  Since we had already had a party it was low key but fun.  She got her favorite dinner and favorite dessert.  She brought cupcakes to her class to celebrate and, since she really has no idea what a birthday is, we got her a shirt so she could announce it to everyone!


Finally, we are preparing for our trip to Joni and Friends family camp!!!  We are SOOOO excited!  We got a packet in the mail with more information.  Basically it seems that the day we arrive we will get settled in, have dinner, have an opening/welcome ceremony, and then have an ice cream social.  For the next three days we will have breakfast in the morning and then we break off.  The girls will go with their helpers for a morning of music, crafts, activities, etc.  The boys will go off for some teen/youth events.  Then Larry and I will go for adult events like worship and teaching, a time for moms to be pampered, a time for dads to have a bbq, etc.  We will come together again for lunch.  After lunch there will be events for families.  We can do whatever we want.  We can swim, go horseback riding, ride a zipline, play at the beach, etc.  Then we will eat dinner and the evenings are activities planned for the whole group.  Things like western night, crazy hair/hat night, a talent show, karaoke, etc.  One night is a date night for the parents.  They have all kinds of fun stuff planned for the kids and they feed us a nice dinner and give us a night to enjoy together.  How cool is that?!  Then on the last day we have breakfast, come together for a closing ceremony, and it is over at noon.  I'll be sure to share all about it!

I also want to tell you about I Run 4 but I'll do that in another post.  I'll leave you some random pictures.
Oksana with Anna and Elsa from Frozen at her cousin's birthday party.  It was a blast!

Evan is jumping 2 foot jumps now!

Ready to go....in her underwear and a jacket, Clayton's shoes, my purse, and my sunglasses :).

Oksana with the puppy being trained to be a therapy dog at her therapist's office.

3 comments:

Sharon Edwards said...

So glad for the update. Sounds like things are going really well right now and I'm so happy for you.

Sabrina Steyling said...

Thank you for sharing this very positive update! I am so happy for your family. Congrats to the boys on reaching the end of their homeschooling year, and a belated happy birthday to miss Anya! Have fun at Joni & Friends, can't wait to hear all about it!

P.S. Tell Oksana I think that last pic of her with the puppy is way cute! Animals are amazing creatures, aren't they? <3

Ali Rae said...

I've written before but I wanted to say again for being so real about your family's life. A few days after you posted about NAMI the social worker at the school I work at called me and asked me if I've ever heard of NAMI. Because of your post, I found the NAMI services in our area and we are hoping that they will be the answer for one of our students who is really struggling and his family who is holding on by a thread. I have no children of my own, and I read a lot of blogs to try to understand my family's I work with and what they experience. Many people paint a wonderful picture of their kids and I love that, but what really helps me is when families are brutally honest and share the down and dirty of what they are dealing with. I hope one day, if I am blessed to have children that I can share with others the beauty and struggles of parenting.