Tuesday, June 2, 2015

Praying Hard

Oksana was released from the hospital on Friday despite the fact that we strongly disagreed that she was well.  Unfortunately insurance has the last say.  The social worker called the state hospital that we have been trying for months to get into and told them they needed a bed.  The intake manager at the hospital told him they had a bed (funny since we had always been told they didn't) but when she found out it was Oksana she started to backpedal.  I was IRATE.  We had called this woman tirelessly for months trying to get Oksana in and it seems they were passing her up when beds came available.  The reason is that they don't normally take kids with other disabilities.  The thing is we had already been through a process months ago to determine if they would be willing to make an exception for her considering the severity of her mental illness, and they said they would take her when they had a bed available.  Our Crider and Regional Center caseworkers literally worked non stop for 2 days trying to find her a placement before the hospital released her.  We all knew she wasn't ready to come home.  In the end they came up with nothing.  They had called the state hospital a couple of times and their calls weren't being returned. 

We picked her up just in time to send her to bed Friday night.  After she went to bed her respite center called.  They had a kid who didn't show up and they wanted to know if she wanted to come in the morning and spend Saturday and Sunday with them.  Saturday morning we got up and went to the NAMI walk and then took her to respite.  Her time there was rough.  She came home Sunday evening and our in home respite provider put her to bed so we could go have dinner with friends.  She attacked the respite provider and she sent her to bed early.  The next day I had a respite worker from her respite center come spend about 5 hours with me during the day to give me an extra set of hands.  This threw Oksana off so she did fine while she was there as she thought it was neat to have someone else in the house.  At dinner last night she completely lost it and went into an hour long rage that ended in her being sent to bed early.  This morning she seemed Ok but quickly turned when her breakfast didn't do what she wanted it to.  That was a 2 hour rage in which I had to remove Anya to keep her safe.  This afternoon we are headed to see the psychiatrist which is just about the only reason I didn't take her back to the hospital today. 

So, after all of that, this is where the prayer comes in.  I called the state hospital this morning.  I left a message telling them that I was currently in the basement with my 8 year old to keep her safe from Oksana who was just released from her 5th inpatient setting since February on Friday and I needed them to call me NOW and give me some answers.  Much to my surprise she did.  I gave her a play by play of what had happened and they are meeting with the medical director this afternoon to see if they can take her.  This HAS to happen.  I have no idea what else to do.

6 comments:

Sharon Edwards said...

Praying for you.

Emily said...

Praying fervently that Hawthorne will take her. Praying, praying, praying.

Samara J. said...

Praying praying praying

pat said...

Praying for you all!

Sabrina Steyling said...

Prayers are going up fast and furious!

Cherbos said...

Praying for you and your family. I am very sorry that the state hospital intake person has been dishonest with you. I do not know the right way to say this, but I am humbled by the way you continue to handle this with such grace. I know your readers are not there to see everything in person. But, I know I would have long been reduced to a blubbering mess(not that a blubbering mess is someone to look down on..see? I do not know how to express what I want to say.). I know that I would want to yell and stomp my feet and say things I have never said, in public, or in my head. I am so angry at the lack of help you have received from the state hospital, and I do not understand why families of kids(or adults) with mental illnesses are not given enough support. Your blog has opened my eyes to this situation, I almost wonder if you should print out a few copies of the relevant entries, and give them to the intake staff.