Oksana saw her psychiatrist a couple of weeks ago. She said we are definitely dealing with something neurodegenerative. Not that I didn't believe the geneticist, but it's helpful to hear it from doctors who have known her for years. We didn't make any changes to her meds at this point and we are going to see her again after Oksana comes home.
She also saw her GI doctor for a follow up after her hospitalization to be disimpacted. Her belly is looking good and the medication is doing it's job to avoid this happening again!
Last I heard 95% of the paperwork was completed to submit her equipment to insurance. By now it should all be done. I hope we hear their decision soon!
Medicaid infuriates me. They might be the sticking point to getting her home as soon as we had hoped. That's all there is to say about that!
Our seating and mobility guy came over a couple of weeks ago to look at our bathrooms and help us with adapting them and he brought us an amazing bath seat for free! Another family got it and only used it once. They told him to donate it to another family and he immediately thought of us. It's so cool! Here are some pictures:
We found an adapted van too. We have searched high and low for the best van for our family at the best price. We found it in Maryland! As of right now we have put some money down to hold it. We know someone in the automotive industry in Maryland who is going to go take a look at it for us. If he feels good about it we plan to purchase it. My dad lives in Maryland and he is going to drive it here for us! We are trusting God to help us get this van. We have started a fundraiser here:
https://www.youcaring.com/oksana-loraine-503973
We also plan to have a trivia night in April to raise some money. Needless to say we are staying very busy trying to get this kiddo home!
1 comment:
Sounds like you have so much to do to get ready for Oksana to come home. I sure hope she gets her Make a Wish. Bethany qualifies for Make a Wish but we want to wait awhile before we do hers. Obviously, you would want to move on it fairly quickly for Oksana. Praying it all works out.
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