Sunday, August 9, 2015

Waiting again

I thought I had done enough waiting through 2 adoptions to last me a lifetime.  Apparently not! 

Medicaid refused Oksana.  There are 2 main reasons.  First, she has not had 30 consecutive days out of the home.  She had 7 days in the hospital came home ONE day and was put in residential for 26 days.  That doesn't count. :/  Second, we dared to plan for our future.  We have a 401K with more than $1,000 in it. 

The good news is we can fix those.  The hardest one to fix is getting Oksana out of the home for 30 days since we can not find one single solitary place to take her.  This is where the waiting comes in.  We made the decision with our team to try to get her back in the residential center she was in before.  They took her once, we just need to see if they will take her again.  We had not been considering it up to this point because I did not like that place much for 2 main reasons...they did everything for her and made her regress terribly, and their psychiatrist drugged her into oblivion and sent her home as "better".  This time will be a bit different because we will not be going through insurance.  This is actually being funded by Crider, the mental health agency we are working with.  Because of that Crider will be overseeing their care of her.  They will write plans for the residential center that say they can not do everything for her.  Now whether or not they will follow that is another story, but at least there will be oversight.  Also, I will not be accepting services from their psychiatrist.  I will pick her up for all of her psych appointments and take her to a psychiatrist I trust.  Between those two things I think we can have a better experience there.  Honestly, we have no choice.  Not having Medicaid is not an option.  We need that to move forward.  The good thing about sending her back where she was as opposed to another place is that it is near us (40 minutes away versus the 2 and 4 hours away of the other places), she gets to keep her current school since it is on the same campus, she will be in a familiar place, and we do know they will take good care of her.

The question now becomes will they take her back?  They are reviewing her file again.  There is no guarantee they will take her just because she was there before.  I am really hoping we have an answer on Monday.  If they say yes we need to find out how long until they have a bed open.  Once she is in we will start getting rid of our 401K so that after the 30 days we are ready to go with Medicaid.  Once we have medicaid we can start working towards independent supported living.

If they say no.  I don't even know.  I can't even go there right now.

In the meantime I am going to be calling our Senator tomorrow and trying to set up a meeting to share our story with him and see if he can offer any help.  On Wednesday Anya starts school and next Monday Oksana starts.  I am beyond ready.  Anya is bored out of her ever loving mind.  She did great until about the last 2 weeks.  She is DONE with summer.  Because of Oksana being here all day every day we are trapped here which isn't helping the situation.  Next week I have no respite so it should be very interesting. 

Back to waiting for news.  I'll update when I have it. 

4 comments:

Sharon Edwards said...

It's so sad that it is so difficult to get the help you need. We have tried for a year and a half to get a waiver for Sophia with absolutely no luck. The waiver would provide Medicaid and several other things as our insurance will not cover much of her therapy and it can get really costly. My biggest problem has been getting someone to just screen Sophia. You wouldn't think that would be so difficult, but apparently it is. I hope you get the help you need and that her Medicaid will go through.

Samara J. said...

I keep praying for you. Stay strong

Sabrina Steyling said...

You're all in my prayers continually! And as a side note, I wish I lived closer to you because I'd love to take Anya on a playdate! I'm nothing more than a grown up kid, so I'd be having fun right along with her no matter what we did. :)

Samara J. said...

How are things going for you Erin?
Praying for you