Well, that makes sense. These are like big thick AFO's bound to her legs with bandages. Apparently this is related to the massages that she gets on her legs. When they brought her in and laid her down she immediately started crying and crying. They wanted to lay her flat and she wanted to be propped up so they brought some pillows to lean her up. I still don't think she was thrilled, and it's rather likely that she was in pain. I think she wanted to be able to go outside too. I immedately looked at Larry and said "This is going to be a long 2 hours". Now we are stuck in this tiny room and she is imobile.
As usual, she spent a good amount of time playing with bubbles. She liked it when I would make a really big one and then she would lean forward, pop it with her nose, and crack up laughing:
We gave her a snack and then about an hour into our visit they took off her bandages. We played a bit more but she was getting tired of our games and when we went to pick her up we discovered she was wet. Of course all she wanted to do was be held, wet or not, and I knew that if I told them she was wet that would be the end of our visit. We got a good look at her and figured out that she was wet enough to need to be changed so we took her out to the hall to find a worker and explain the situation. They took her away, explained it was time to eat and sleep and sure enough our visit was over 1/2 an hour early. Honestly, at that point there was some relief because we were out of entertainment options in that room! This time she was most definitely not happy when they took her away. I'm still not sure if it's from some desire to be with us, or because she knew they were going to change her but she started crying as soon as they turned their back on us and went through the door.
We saw a lot more 2 year old behavior today...putting toys and crayons in her mouth, throwing toys when she was sick of playing with them, etc. We felt a bit defeated today but luckily this came on the tail end of a great visit so it was easier to handle. I did get some video of her saying Clayton and Evan's names.
She really doesn't know who they are. She has very little interest in our photo book. We try to talk about them but she won't get it until she is living with them. We are praying that tomorrow we can take her outside again.
5 comments:
She is precious! I hope you get some time to take her outside next time!
Remember with kids - the days are long; the years are short.
God makes everything beautiful in His time.
Hang in there! We're praying for you.
Cindy -beend for the Voelkers
She is soo precious Erin!!
I hope each visit continues to get better and better. Also praying for the court date to go smoothly!!
Hang in there it is all going to get better. Remember to look for the light at the end of the tunnel AND IT'S NOT THE TRAIN (hope I made you laugh remembering our earlier e-mails). Take care!!
Dear Erin, It will make a difference when you have her home, and having two disabled children, I know what you are both taking on. You are heros for doing it willingly, while those with biological disabled children are just thrown into it.
You and Larry are her lifesavers - and God will bless.
Pat in St. Peters
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