EEG

Tomorrow morning at 9am Oksana will be having an EEG. Tonight she has to be sleep deprived so we are putting her to bed at 11 and waking her up between 3:30 and 4 am. I'm tired just typing it! We have been spending the week looking at pictures and watching videos of kids getting EEGs to prepare her. Now she is very excited about it ;)! Obviously if she is indeed having seizures we are praying that she will have one during the EEG so we can know for sure. I'm a little nervous that she won't have one and they will think that she isn't having them when she really is. I guess they know more about this than I do so I can trust them to know for sure either way. I'll be sure and post and update with pictures as soon as I can tomorrow.

Before I go I really want to share how amazing God has been in helping us find a neurologist. When we went to Shriners in July you might remember we had no plans to see a neurologist but the offered since the neurologists "happened" to be in that day and they "happened" to have 2 cancellations. We took them up on it if for nothing else than to have someone else read her MRI. Dr. Neil was a very nice man and he is the one who diagnosed her with microcephaly. When shen went to the pediatrician recently we were told that Dr. Neil is the best of the best. When we started to suspect that she was having seizures we called Shriners to see if we could see him again and we were told "We don't do seizures, you are going to have to call his office." I called his office and they said he no longer has a clinic there to see patients but they would ask him who he would like them to send Oksana to. 2 days later my phone rings and it is Dr. Neil. I was shocked! He said he had looked at her notes from Shriners and was curious what was going on. I told him of our concerns and he agreed that it sounded like she was having seizures and said HE wanted to see her! He ordered an EEG through Shriners so that we wouldn't have to pay anything! Since Shriners doesn't do EEGs we will actually be doing it at Childrens. He said if she is indeed diagnosed with epilepsy we will no longer be able to go through Shriners and we will have to see him out of Childrens but I was thrilled that we could do the EEG through them! As disappointed as I was in my time at Shriners, God orchestrated it so that Oksana is being seen by one of the best neurologists in the nation! Amazing.