Sometimes I struggle with what to write here. It's not for lack of material but more about wondering what is relevant to my readers and what isn't. I also factor in how much I'm willing to share in a public blog. Often that is what keeps me from blogging regularly.
Because of that, I'm asking you to throw some ideas out at me. Do you have any questions? Anything you haven't seen me address in awhile and want to know more about? I'm open to anything. Throw something at me :).
5 comments:
I like reading your blog :) I don't know if you've addressed it before, but would you possibly be willing to talk about what you do when you get discouraged? I don't anymore, but I used to take care of a kid who had physical and intellectual disabilities, sometimes we would have great days, but other times I would get sick and tired of having one-sided conversations, heavy dropped weight when walking, or pinching. It was frequently a very lonely job, and I felt bad about that, since it didn't make sense to feel lonely when you weren't alone!! but I never really figured out how to not feel that way anymore. I worked on encouraging his mom since she was frequently pessimistic, but encouraging someone who had such a dark view of everything when you got discouraged yourself wasn't possible! I know that in your family you say that Oksana's illness is what's bad, the real Oksana is funny, sweet, and joyful, but what do you do when a kid doesn't have traits like those? I wasn't sure what to do when outings went from being new and fun to repetitive and dull...
I love reading your blog but never commented before :) I would be interested to know more about the girls development particuarly communication, what sort of level are they at? And although you talk about Oksana's schooling you haven't mentioned Anya's for awhile (or ive just missed it!)
I stumbled upon your blog when you did an article for ellenstumbo.com. I can't find the title at the moment but i think you were talking about isolation from friends because of the constant supervision your girls need. I really appreciated that article..the reality of what we deal with as special needs parents. Others just don't understand most of the time. I am always blessed when i stumble upon articles that deal with those realities...how caring for our kids with special needs affect every part of our lives. I don't really have others to discuss these things with so when i can read things that helps a little. Thank you for sharing on your blog. I pray for your family when i read your posts.
I love your blog!
Some things I'd like to know about are: what is Oksana's level of self-awareness like? I remember you referencing that she asked the pdoc if it was time to "talk about my brain" - is there more of this?
Do you feel comfortable sharing more information about how Oksana views her own adoption? For example, does she identify with Anya based on being a fellow Eastern-European-Adoptee? Are there things that having an adopted sister bring out about the trauma Oksana faced or memories she might have of living in an orphanage? Of course, a lot of that is her story to tell, so I hope I am not crossing a line when asking. Does Oksana know that in her short life she has faced a lot more trauma than most, or does she not really realize the depth of her own experiences?
I love your blog also. I have enjoyed learning about your family and hearing the ups and downs of the things that have happened.
I would be curious how Oskana's mental health issues have effected you and your husband. Has it placed any strain on your relationship? Do you agree on the methods used to help her? How about other relationships outside the family? How have people accepted Oskana?
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