Oksana is back in the hospital. To make a very long story short she has not been doing well at all for about the last 5 days. She was self injuring to the point that she was leaving horrible looking marks on her face and chest. I couldn't even take her out in public she looked so bad. I had seriously considered hospitalizing her on Tuesday morning. I decided to hold out because that afternoon she was going to her second appointment for the testing she was having done to try to help us find out what exactly we were dealing with regarding her mental health. Let's just say that appointment did not go well at all. I asked to speak to the doctors privately to explain what she had been doing. During that time the psychiatrist did confirm that she believes Oksana is schizophrenic. In the meantime Oksana spent an hour and a half of her beating Larry up. It took both of us and 2 psychiatrists to get her to the car and we went immediately to the hospital. We were put in a room in the ER because she was agitated and we feared she would become aggressive in the waiting room.
She is doing fine at the hospital. Obviously we know everyone there well now and she is comfortable there. She had a pretty significant episode around 5:00 tonight. I came in for visiting hours about 45 minutes later and she had some nice fresh injuries on her face :(. Once she saw me and heard that I had brought glitter markers to color she snapped out of it and we had a rather good visit.
The doctors and the social worker of the hospital have put in referrals to 2 long term facilities. Both are good places but there is one we prefer for a number of reasons. The problem is that they don't normally take kids who are developmentally delayed. Oksana would be an exception. Everyone is working hard to help them understand how severe her symptoms are and that she is med resistant so we really need their help. If they do not accept her hopefully the other place will.
We are really at peace. Oksana is so ill now that we can not help her any more at home. If she had cancer we wouldn't keep her here to avoid the hospital. She needs specialized care that can only be given through long term treatment. We have no idea what to expect as far as length of stay but we know without a doubt that we are doing the best thing for everyone involved. We have been very open and honest with Oksana about this and she does understand that this is necessary.
I'm hoping to hear more soon on where she will go. The hope is that she will transfer right from the hospital she is at to the new one. If you are praying for us please pray that she would get into what ever program would be best for her. God has already done some pretty incredible things to help us so I have no doubt that He is watching over this child! I'll update when I know more.
12 comments:
Praying for you.
I am sorry to hear about the latest news. I agree that she is certainly needing specialized treatment, and that you have tried and done everything humanly possible to help your girl. I cannot begin to imagine watching my child hurt herself so badly. Your strength is so admirable. I hope that you have the opportunity to connect with some sort of a support group, just as if you were the parent of a child with cancer. I was curious about something you mentioned in this post. you said that she was doing poorly, but at the sight of you with a distraction, she was able to enjoy a fun evening with you. Is it because of the medicine that she can redirect herself in this manner? I am praying that she gets into the program that you think will suit her better, and that the doctors work with you as a team to find the best way to help her.
Praying for Oksana and your family. This must be so hard. But it sounds like you have some good professionals helping you. And many others like me, who you don't even know, but who uphold you in prayer. Blessings.
Praying for God's hand to continue to guide you all and to protect you. Sending love and hugs, too.
Many prayers that God will open the door to the facility that will love and be able to treat your girl. Prayers for peace in her brain and in your hearts - you are incredible parents!
I am praying for you and your family. I believe with you that God has a plan for this child of His. Be comforted.
I wish I had some great words of comfort here....but I don't--please know that you and your family are in my prayers
Good question. When I got there she had been going for 45 minutes. While she still looked mad when I came in she was quiet and so she had already been coming down. Had I arrived in the middle of it she would not have pulled out of it like that.
Praying for all of you. Hope Oksana can get the help she needs.
Hard stuff. Glad you have peace. Sorry this kiddo needs so much help, but she definitely does need help. Praying she gets the right place.
I will be praying for Oksana and your entire family. Hoping she gets into the hospital that you prefer for her. Sorry you are all going through this.
Well. Lots going on. Many prayers for you all.
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